“It all started in the summer of 2022.

I had regular migraines accompanied by Auras, in September the crises intensified, about 2 crises per week, my doctor decides to make me pass an MRI that I realized in January 2023, and there it is the cold shower, I am announced that I have a straight frontoparietal meningioma of approximately 3cm in diameter , the neurologist of the center sends me to consult a neurosurg monitoring.

I meet this very professional but very cold surgeon, he just tells me that for the moment we watch every 6 months and that I have to find a neurologist for my follow -up. I leave from this even more upset appointment because I had no answers to my questions, it only tells me that this tumor is benign and hormonal , it also makes the rapprochement between my treatment for my PMA (Menopur+ Ovitrelle) or the Optimizette pill that I took for about 8 years.

At the end of March I start to have kinds of "crises" of absence, like black out, I feel feverish and suddenly nothing, I do not know more or I am, what I do, I am aware but as "paralyzed" a few seconds and when I take my minds I do not know at all what I was doing, everything is forgotten and often follows a headache. I therefore consult my neurologist who makes me pass an electroencephalogram and there 2nd cold shower I make partial epilepsy attacks.

April I return an MRI to check what is going on, the tumor has grown, I return to the surgeon, he does not really understand this growth so fast because meningioma is a tumor that develops very long. Not too worried about him, we always monitor unless other symptoms arrive.

The ordeal begins: Impossible for me to drive I am suspended my license, I had to fight for 4 months with my neurologist and an authorized doctor from the prefecture to be able to take over the car, I was authorized a new license valid for 1 year ... During these 4 months my husband had to change his work schedules to make the taxi for me and for my children, he had to work at night for 4 months to take care of us the day ...

Time passes, I often feel dizziness, fatigue and migraines of + in + present and stronger. No more treatment calms the crises, it wakes me up at night, gives me the nausea, it is very disabling and I chain work stoppages with each crisis. So I iron an MRI in early November, the tumor doubled in volume ... I am destroyed, I do not understand, I take up an emergency appointment with the surgeon and there it announces to me in early December that it is necessary to operate very quickly, the meningioma grows much too quickly and compresses a good part of my brain and above all it clamps my main venous sinus, which creates all the symptoms. It begins to emulate all the side effects in particular the big risk of paralysis on the left side, the possible hemorrhage, the concerns of language, speech, memory.

I have 2 children below -I am 35 years old , I see my life scrolling and I ask him to let me spend the holidays with my children, which he accepts and sets me up an operating date on January 10, 2024.

The operation went well, the surgeon did a very good job, I have extreme head pain, vomiting, numbness on the left side but everything works is the main thing. I start to walk slowly after 8/10 days. The symptoms gradually fade and I quickly find my autonomy.

Today I feel tired, a little depressed at times and I look forward to the continuation, I ironed my post -operative control MRI 10 days ago, everything was removed except the main root of 6 cm which is still present (it was planned before the operation in view of its location). I see the surgeon again today for the future, we will continue the care with radiotherapy sessions.

Thank you for reading me, this is the first time that I write my journey and that I finally realize everything I have gone through and everything I still have to cross to be finally rid.