Who are we ?
Our raison d'être
We want to raise awareness of this tumor, and ultimately, that there will be no more victims of progestin hormone treatments that induce this tumor.
Amavea est une association pour soutenir chaque patiente et patient, victime de méningiomes.
L’association a été agréée par la Ministère des Solidarités et de la Santé le 8 juillet 2020 (Journal Officiel)
Le but de l’association Amavea est de soutenir chaque victime potentielle ou avérée souffrant de méningiome qui nous contacte. Le méningiome est un effet secondaire grave des progestatifs de synthèse et des œstrogènes de synthèse.
Tous ces traitements, sans exception, sont mis en cause dans la survenue de méningiomes. Ces tumeurs intracrâniennes peuvent se révéler particulièrement dangereuses. Ainsi, il nous tient à cœur de recueillir et diffuser toute information sur ce sujet.
Le méningiome est souvent désigné comme un tumeur « bénigne ». Ce terme scientifique cache une maladie qui n’a rien de bénin. Ces tumeurs sont complexes à soigner, demandent parfois des opérations chirurgicales délicates et de longues convalescences. Cette maladie peut bouleverser la vie des personnes touchées.
From left to right: Patricia Cappe, Brittany delegate, Emmanuelle Huet-Mignaton, President, Isabelle Tanguy, Brittany delegate, Anne Le Beuz, volunteer Neurosurgery service in GHU Paris
Scientific council:
specialists on board
In order to validate its actions, the association is based on the knowledge and skills of the medical profession made up of:
Professor Johan Pallud
Head of service and neurosurgeon at GHU Paris Psychiatry & Neuroscience
Professor Romuald Sixeur
Head of service and neurosurgeon at the Brest University Hospital
Doctor Fanélie Barral-Clavel
Neurosurgeon at the Saint-Etienne University Hospital
Doctor Frederic Dhermain
Radiotherapist at Igr- Gustave Roussy
Amavea in a few words
Resources to enlighten you
Explorer nos brochures et documents consacrés aux méningiomes, leurs traitements, ainsi qu’aux démarches médico-légales pour mieux appréhender et agir.
Accédez à leur contenu dès maintenant !
360 support to support you
Find human support, mutual aid and listening to people who are also victims of these drugs, learn about legal procedures, and discover our advice on the medical journey to favor.
Regional delegates to answer you
If you live in one of the regions concerned, do not hesitate to contact your regional delegate! It is there to answer all your questions and help you connect with other people during local encounters.
The association needs you
To speed up the fight!
Your commitment can change everything. Together, we are stronger!
Join the association
Adhered to the association to contribute to our actions and join a united community.
Donate
Make a donation to finance our resources, our awareness campaigns and support for patients.
Since 2019, Amavea is :
+ 1000
Membership
Each year, more and more committed volunteers join our cause, providing support and comfort to patients. Thank you to all our precious volunteers for their dedication!
20
volunteers
To answer your questions, via the mailboxes of delegates, to support you when you are hospitalized, at GHU Paris or at the Brest CHU
6
years of existence
6 years of work with the ANSM (National Medicines Agency), thousands of patients concerned who were helped.
