This questionnaire is the result of several years of work between Professor Johan Pallud, neurosurgeon at GHU PARIS, head of department, and myself.
The aim of this project is to improve and optimize the medical and psychological care of the people concerned, through a better understanding of their daily lives.
It will also help to compensate for damages suffered in the context of amicable and judicial proceedings.
The widespread dissemination of this data, particularly through scientific publications intended for healthcare professionals, will help to reduce in the long term the number of patients affected by the occurrence of a meningioma in the context of long-term use of progestin medications.
We are therefore counting on you to complete this questionnaire.
It lasts approximately 30 minutes.
It is important to answer ALL questions.
It may seem long, but it's necessary to gather as much data as possible.
Even if you have no problems, if you have a meningioma, or have had one in the past, you are concerned by this questionnaire .
You can :
– to pause the questionnaire, save your answers already completed, and return to it later (by clicking on the "Save and return later" ). In this case, a link will be sent to you to continue your answers.
– Get help with your answers from a relative, spouse, or your children
– send the link to an acquaintance who has a meningioma, male or female.
The association needs you: you are essential to this initiative, unique in France, and unique in the world in terms of the number of people with meningiomas gathered in an association.
For any questions, you can contact Dr. Benoit Hudelist by email at benoit.hudelist@ghu-paris.fr or by phone at 01 45 65 86 50
Link to the questionnaire : https://ecrf.ghu-paris.fr/surveys/?s=NH9HL3FX7FYYX3YK
We're counting on you to respond in the hundreds or even thousands!






