Understanding Progestin-Related Meningiomas AndrocurLuteranLutenylColproneOvergestoneDEPO-PROVERAAntigone
Who are we ?
Amavea is an association that informs and defends patients with meningiomas because of drugs Androcur, Lotéran and Lotényl, Colprone, Surgestone, Depo-Provera, Antigone, Optimizette, Cérazette, Elfasette and Déogestrel
In 2025, the association is 6 years old. It was created in January 2019 by Emmanuelle HUET-MIGNATON with the help of Nathalie GRILLOT, both of whom were affected by progestin-only medications that caused them to develop meningiomas.
To date, the association has more than 1,000 members! The number of people affected is always increasing, and the association responds to a need for information on the issue of meningiomas and progestins.
AMAVEA received approval from the Ministry of Health in July 2020.
There are thousands of women with meningiomas due to progestin-only medications, and millions of women who are still prescribed these progestins!
However, not all meningiomas are caused by progestin medication. It is estimated that between 10 and 20% of meningiomas result from progestin treatment.
Find out how to receive support from the association or how to take part in our initiatives.
We answer you
What is a meningioma?
Meningioma is often designated as a "benign" tumor. This scientific term hides a disease that is nothing benign. These tumors are complex to treat, sometimes require delicate surgical operations and long convalescences. This disease can upset the lives of affected people.
Are you affected by a meningioma? We can accompany you.
Our latest news
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Day at GHU PARIS on October 3, 2025
Read more
: Day at GHU PARIS on October 3, 2025
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Convalescence after meningioma surgery
Read more : convalescence after meningioma surgery
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New procedures within the Dante-Dansto-prejudice of anxiety and compensation system
Read more : New procedures within the Dante Dante-Prejudice of anxiety and compensation system
Progestins and risk of meningiomas
Medicines concerned
To date 7 drugs have been demonstrated at risk of meningiomas:
- Androcur (cyproterone acetate),
- Lutéran (Chlormadinone acetate),
- Lutényl (nomegestrol acetate),
- Colprone (Medrogestone),
- Surgestone (Promegestone),
- DEPO-PROVERA (MédroxyProgesterone acetate),
- Antigone, Optimizette, Cerazette, Elfasette and Désogestrel 75µg
The list is not exhaustive, there are potentially others, studies are underway.
How to detect meningioma?
If you have symptoms evocative of the presence of meningioma, screening may be necessary and you should ask your prescribing doctor to provide you with a cerebral MRI with injection of contrast product (recent recommendations on the indication of a brain MRI to seek meningioma).
The GHU Paris allows you to have a quick screening, if you have taken one of the progesterone derivatives.
You can benefit from this screening by writing to this single email (having a prescription for a cerebral MRI of your doctor): Depistage@ghu-paris.fr
Our actions to support you
Partnership with hospitals
The association has signed a partnership with GHU Paris, so that volunteers can visit patients and close to the neurosurgery department. The volunteers trained and invested are more and more numerous each year: Magali, Anne, Mireille, Cécile, Eric, Catherine, Carole, Karin, Sophia, Patricia.
Legal support & facilitation of the medical journey
One of the objectives of the AMAVEA association is to support the victims who have developed meningiomas following the taking of hormonal treatments such as Androcur, Luteran, Lotényl and other progestins, in their legal procedures to request compensation.
Offer a speech
Thanks to a private discussion group on Facebook, we can unite the victims, support them, allow people to make links, in their medical history, with symptoms, to support them, when they discover “reality” of this injustice by MRI.
Meningioma treated with proton therapy and gamma-knife, after taking Lentenyl
My two tenants are you a woman? Has your gynecologist already prescribed progesterone tablets such as Lentenyl or Luteran? If so, this testimony may interest you. A few years ago, in 2021, my new tenants became known. I often had a closed eye, as if I had […]
Sophie 38 years old, Melodia contraceptive pill for 14 years, 1 meningioma operated
My name is Sophie, I am 38 years old, I am married and I have 2 children aged 4 and 5 years. I took a Melodia contraceptive pill for about 14 years. Having difficulty having my first child, I followed a PMA route for 1 year with injections of hormones, ovitrelle etc ... I got pregnant […]
End of Corinne's testimony: "savor the present moment"
The weeks following my radiosurgery session, I had headache, more intense, with this feeling that my head was compressed and that it was going to implode. I also always feel this eye pain like a pious that turns in my skull. Fatigue too, is still present two weeks later. My […]
“You have to treat it”…
Following Corinne's testimony: "You have to treat it" ... 9 months after the announcement and its emotional tsunami, and 2 MMI intervals ... here I am there ... at this second appointment with the neurosurgeon. As I have been waiting for myself since the exit of the imagery center and after hearing the radiologist assert me that the squatter had grown, it is […]
After the tsunami of the announcement, the anxiety of waiting….
After the shock of the ad, I have to wait…. The day after my MRI, my attending physician receives me and comforts me in his own way ... "It is not lucky to have a brain tumor but in your bad luck you are lucky to have the least worse of all”. Ok that will not kill me yes […]
We help you see more clearly
Find out thanks to our resources
Booklets and files
Consult our booklets and files dedicated to meningiomas, their treatments, and the forensic procedures to better understand and act.
Discover their content now!
YouTube channel
Find informative videos, patient testimonies and expert advice on meningiomas and progestins.
Subscribe now!
Join the fight against
meningiomas!
Each day, thousands of people affected by meningiomas and their loved ones need listening, support and reliable information. By engaging alongside us, you participate in an essential cause: support, inform and defend patients in the face of medical and administrative challenges.
Join us and make the difference!
Since 2019, Amavea is :
+ 1000
Membership
Each year, more and more committed volunteers join our cause, providing support and comfort to patients. Thank you to all our precious volunteers for their dedication!
20
volunteers
To answer your questions, via the mailboxes of delegates, to support you when you are hospitalized, at GHU Paris or at the Brest CHU
6
years of existence
6 years of work with the ANSM (National Medicines Agency), thousands of patients concerned who have been informed and helped.
