Patricia- 66 years old- 1 meningioma operated- more than 10 years of Lotényl

Lutenyl

Hello everyone,

Voici l’histoire de ma maman opérée le 3 Décembre 2019 d’un méningiome côté gauche à l’âge de 65 ans.

To locate the story, I will go back to the start of the facts. In the summer of 2017, with my family, we noticed that mom "lost" her head a little. She no longer remembered what we had just told her, she always repeated the same things but since that was not going hard in her couple, we put that on the account of fatigue and an emerging depression. In view of all her disorders (dizziness, memory loss, weight loss), I ask her if she talked about her attending physician. She replies yes. I trust her and we continue to believe that everything will work out when she is separated from my dad and that she will have her house.

Years pass. Until September 2019 when a Sunday, she is very tired and she stays lying all day. My dad does not offer her to take her to the hospital because he would have refused her help anyway. Therefore, my dad warns my brother, who moves, and decides to contact a friend to mom to take her to the doctor on Monday morning.

That morning, the doctor announced to him to hospitalize urgently to take stock given the circumstances. She has indeed lost a lot of weight over the past year. I think she doesn't realize what the doctor tells her.

Nous sommes le 30 Septembre 2019 quand elle rentre à l’hôpital. Nous ne savons pas à cette date qu’elle n’en ressortira pas tout de suite. L’annonce du méningiome tombe le 4 Octobre 2019 après toute une série d’examens. Elle est envoyée en consultation au CHU d’Angers pour voir le Neurologue qui doit étudier la meilleure façon d’opérer. Effectivement le méningiome est très gros et mal placé (à côté d’une artère) et le chirurgien ne sait pas comment faire. Il y a concertation avec plusieurs spécialistes et ils décident d’essayer de faire diminuer cette « tumeur » en donnant de la cortisone. Chose qui fonctionnera.

She returns to Le Mans with her treatment and waiting. She doesn't even know what happens to her. She lost the notion of time and space. She is very tired. The hospital makes her physiotherapist so that she remains active because she tends to lock herself up and stay in bed all day.

The date of the operation is finally announced to us. It will be December 3, 2019 but the risks are significant. Anyway, we have no choice. You have to have this "thing" removed.

The operation is longer than expected but goes well according to the surgeon. When we will see it near the intervention, the words are confused. A cow corresponds to the window …… and it does not recognize us.

Après 1 mois au CHU d’Angers, elle est admise dans un centre de rééducation car il faut tout réapprendre. Elle ne sait plus se déplacer autre que dans un fauteuil, elle parle très difficilement et elle ne reconnait pas grand monde.

The rehabilitation center does a great job. She speaks again and almost correctly but she cannot walk again. Standing stands up.

Aujourd’hui, à 66 ans et après un an en centre de rééducation, elle est entrée en EPHAD car malheureusement, elle ne peut pas retourner chez elle. Sa nouvelle vie se passe plutôt bien. Je la trouve épanouie dans cet endroit qu’elle avait l’habitude de côtoyer (elle y avait travaillé et allait rendre visite à son papa très souvent avant son hospitalisation). Elle reparle presque normalement même si parfois ce qu’elle dit n’a aucun rapport. Elle nous reconnait nous sa famille « ancienne » mais je crois que toute la partie récente de la mémoire est endommagée. Elle reconnait ma fille de 9 ans mais pas ma fille de 3 ans. Elle a même du mal à se souvenir de mon mari. Elle reconnait néanmoins les visages bien connus.

After there are days with and days without even there she does not recognize us.

Now you have to wait and hope that memory will gradually come back to him. She has a physiotherapist to learn to move without risks. During my last visit, I was surprised to see her get up from her chair without having her face tense.

In any case, she looks happy in this establishment and they make her participate in a lot of activity (realization of pancakes, peeling apples, kitchen of all kinds ...).

Now we will have to be patient.

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