Benign tumor versus malignant tumor: medical jargon

Meningioma is “Benin”, in the medical sense of the term , opposed to Malin. It is clever, in 1% of cases (clinical data, see below).

Yes, we are well placed, Emmanuelle and I, on a personal basis, to experience the same thing, and yes, we know, very much, that this term, for the victims, is not acceptable. We prefer the term “non -cancer tumor” , so much, we understand, and see, through your testimonies, that this term poses a problem:
- at the announcement, because it is steep, and sounds like “nothing”, while we, we hold “brain tumor”, and dive directly into the nightmare.
- With the doctors, who, according to, have no tact, omit to put themselves in our place, and sometimes use the term, to make us pass for bells, full of sensitive, bordering on parano, ridiculous. We know that too many doctors neglect the feelings of women, their pains, and are able to say that "it's nothing, the symptoms are in your head" (basically, we dream, we affect).
- This word is also “easy”, for whom, around us, wants to minimize; Basically “It's okay, we told you it was Benin! Stop stressing”.
When a doctor takes our anxieties and our suffering lightly, because there is also, in addition to the tumor, the psychological impact, try to change it. We cannot continue with a relationship of trust, broken.
That loved ones make a denial, because it reassures them, it goes for a while. But not beyond. You have to communicate, explain that it makes you suffer, and, according to your condition, and the severity of interactions, distant, or even put these people aside (when you are in condition. Store this in a box, for later. Immediate priority is you and your health).
“Family”: according to, a source of support, a rock, solid, or its inverse extreme. I do not give any value to this term. He represents little, for me, so much, around me, it is anything but this haven of peace. Create your own cocoon, relatives, with, or not, family in it, that's it, my “engine”, mine. And I know that again, not easy. For the most isolated, the only thing we can do is to be there, to offer you a space for speech, listening, understanding, without judgment, none.

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Now, the heart of the matter:

1. What is a tumor?
A tumor is a group of abnormal cells that form a mass. It can start in any thousands of billions of cells in our body. Tumors develop and behave differently, depending on whether they are cancer (malignant) or non -cancer (benign).

2. The difference between malignant, and benign tumor: which mainly differentiates a malignant tumor from a benign tumor is the extension. In both types, cells multiply uncontrolled. However, in the case of benign tumors , the latter do not spread to other parts of the organization.

3. A benign tumor generally develops more slowly than a malignant tumor. It can even stop growing (or even reduce). This does not happen with a malignant tumor.

4. A meningioma is a tumor that develops from the meninges. Because meningiomas tend to grow inside the skull, they gradually compress the brain or spinal cord and nerves and can cause neurological disorders. The majority of meningiomas are not cancerous, but “mild” and slow growth. However, some may be more aggressive (source: Lariboisière neurosurgery service, Paris: https://www.neurochurgie-lariboisiere.com/meningiome/ ).

5. Only an operation makes it possible to define the grade of the tumor. This indicates nothing more than its growth potential. Only grade III indicates a clever meningioma.
They are the most aggressive but they represent less than 1% of meningiomas (source: Lariboisière, still). rare pathology and surgery is almost always followed by radiotherapy. The risk of recurrence is high.

—On the site ofAmavea Association Méningiomes due to medication and assistance to victims, an article, on this term which poses us concern (also present, here) :
https://amavea.org/meningioma-tamen-benigne-et-le-sens…/“In any case, when we use this term, here we do it otherwise than by taking up the medical jargon:
- to oppose it to Malin;
-To reassure you, too, because in shock, me, like everyone here, I plunged into a mental hell: "Brain tumor", is the only thing that myself and my loved ones have retained.
You are there, to have good advice, good information, to go, better, and above all, end up doing it, bad memory, or dirt, controlled, in a majority of cases. Do not forget it. And the more the com will be made, the less members, who will arrive with 10, 15, 30 years of taking medication! -

This does not mean, and will never mean that we (and it would really be an absolute irony and nonsense), that we minimize, psychological suffering, pain, the after-effects of treatments, nor that we pass under a modest veil, cases, serious, like deaths (rare, but they exist, when taken care of, too late); handicaps; life, personal, private, which can be heavily affected; professional life, some of which must mourn; And so much, absolutely unbearable, in the daily lives of certain members.

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This subject is there, to recall the points mentioned above, and to recall too, why Amavea Méningiomes Association due to drugs and victims assistance exists, and why, it is important, for whom it can, to join the association: https://amavea.org/adhesions-et-dons/ ).

Thanks to Emmanuelle Mignaton , and on her own, because it is the only one, to carry our cause , we exist. The health authorities can no longer, thanks to his hard work, despite his health concerns, still present (never forget), ignore us. It is thanks to her that letters are addressed to patients.

It is thanks to communication, in all media, media, thanks to it, again, which made known the association ...
Thanks to you, which, on your initiative, or through the testimonies collected by the association, that other women, will be able to be treated, before it is too late (cf. cases, where it is already far too advanced to no longer be able to avoid consequences) , or, even better, to stop, a drug that could harm them.

It is thanks to the flyers , that you can, yourself, distribute to Gogo (available, on request, with your contact details, to: contact@amavea.org) , and thus, become an ambassadors of our cause: the meningiomas linked to the taking of hormones!

It is thanks to the booklet, entirely funded on memberships and donations to the association ( a 2nd booklet is underway! ), That, again, the association plays a decisive role: allowing victims and their loved ones, to understand, and, to the places of care, to doctors, to better understand the problem; Because, let's not be shown, it is not on the part of doctors, as benevolent, be, that we could have got there, in 2 years, barely.

Finally, it is thanks to collaboration with the Dante law firm ( https://www.facebook.com/danteavocats ) that those who wish, can have legal support. And they too, communicate, with the association, in the media, with Amavea Méningiomes Association due to medicines and help with victims .

Sorry for the illustration in English, I did not find a better equivalent, in French.

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