Amavea - Association of Meningiomas due to Cyproterone Acetate, assistance to Victims and consideration of other molecules

Exchange forum

The goal of AMAVAA is to allow people with meningiomas to communicate with each other. And to talk about drug treatments Androcur, Lotéran, Lotényl and others.
So, you can talk about life after operation of a meningioma , meningioma and fatigue , and convalescence after operation of a meningioma , the consequences , and also the question " can a meningioma go "? »»

To support victims and people with meningiomas, the association has put online on Facebook the private discussion group: Facebook group Amavea .
According to the group's administrator, Sarah:

The idea is for me to unite the victims, to support them, to allow people to make links, in their medical history, with symptoms, to support them, when they discover "reality" of this injustice by MRI. To support them, especially when they have an entourage little inclined to listen, but also to encourage them, to never fold the spine in front of the medical profession.
And finally, to demand, each of our "small" level, to be taken care of with all the seriousness and the empathy that we deserve.
In short, ensuring that a "positive" dynamic floats on the group, so that no one feels injured, alone, in their corner, facing this.
Offering a space of speech to all, it is the minimum that we set with this kind of group, where benevolence and listening must be the engines.
Getting help, and helping is the basis of everything, to make this world a little more welcoming.

On this private Facebook group, we have developed popular subjects

???? Popular subjects on the group????
Acne, membership and donations to the association, ALD (long -term affection),
lawyers, fatty hair or alopecia, contraceptives and sterilization, convalescence, cyberknife, medical file, endometriosis, shock, studies, gamma knife, disability, hirsutism, invalidity, the term "benin", libido, novalis tx, operation , (SOPK), driving license, pharmacovigilance, prevention, proton therapy, that neurosurgeons, radiosurgery, radiotherapy symptoms, information, support and sharing activities.
 

Here you will find information, help and support tools for victims and people from meningiomas linked to Androcur, Lotényl and Lotéran treatments.

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