What a better date on March 8, International Day of Women's Rights to mention the risks of the undesirable effects of progestin treatments and bring my testimony to illustrate these words.
I have long hesitated to testify and if I do it today it is to prevent women and avoid them to undergo the same cataclysm.
Health is far too large for you to be silent.
J’ai 54 ans et de 2006 à fin 2020, soit pendant 14 ans, j’ai pris sur prescription gynécologique du Lutenyl, du Surgestone et du Colprone afin de soulager des douloureux kystes aux seins et comme contraceptif.
Despite many increasingly frequent, and increasingly violent headaches reported to various doctors, general practitioners, ophthalmologist and gynecologist, I did not do any other exams.
C’est en août 2020 après de terribles vertiges m’empêchant de me lever que je décide de consulter un ORL. Je passe une IRM cérébrale le 24 novembre 2020. Le résultat tombe et le diagnostic révèle alors 3 tumeurs cérébrales.
Everything collapses then and forever upsets my daily life.
In November 2021, I suffered a first operation to remove an occipital osteo meningioma.
The second large meningioma and unfortunately very badly located in the optical chiasma and pressing the two nerves cannot be operated on the neurosurgeons.
In May 2022, after several years of waiting, I am leaving in Nice to the Antoine Lacassagne center to do 30 proton therapy sessions to try to reduce the tumor that compresses and damages my optical nerves.
Unfortunately this will have no effect on the tumor.
In December 2023, my state of health deteriorated and the neurosurgeon announced me that it is necessary to operate in an emergency to avoid the worst, that is to say to lose your sight.
On February 1, 2024, despite the many risks, I therefore underwent a new and second intervention to withdraw meningioma.
I go quickly done voluntarily, without going into details on physical and psychological pain, however very real.
Today for me the next step in this obstacle course that has lasted for more than 3 years is convalescence, acceptance of disability, damage in everyday life and the impact of the effects of taking these drugs in my family, sentimental and professional life.
Unfortunately, I am not alone in this case, we are thousands and we are fortunate to be understood, accompanied and supported by the Amavea association chaired by Emmanuelle Huet-Mignaton which works a lot for all of us.
Devant le risque majeur de développer des méningiomes, je voudrais dire à toutes les femmes qui suivent un traitement à base de progestérone ou qui doivent le faire que cela n’est pas sans risques et qu’elles doivent l’associer à une surveillance par IRM cérébrale afin de vérifier que tout va bien.
Our health is our most precious property we must take care of it.
