Patricia, 60, married, 3 children and 6 grandchildren.
My story may be a little confused, not easy to make beautiful sentences with the right words and respect the history. Please apologize. My "neurons" are not yet reliable and my view reduced! I am at J+35 of my second intervention.
Premières règles, j’avais 10 ans. Stoppés par un traitement, retour vers 14 ans. Elles ont toujours été très douloureuses et irrégulières. J’ai appris plus tard que j’avais des ovaires polykystiques.
En 1992, 2 ans après ma dernière grossesse mon gynécologue obstétricien m’a prescrit Androcur + Provames comme contraceptif. Je souffrais aussi d’hirsutisme et je prenais beaucoup soin de moi et de mon apparence…
In 1996, pituitary problem controlled by treatment (I don't remember).
En 1997, mon mari a subi un grave accident du travail, il est amputé des deux jambes. Mes règles son stoppées définitivement. Je cesse de prendre mon traitement pour l’hypophyse car j’ai d’autres soucis que de me soucier de moi, mais pas l’Androcur et progestatif… Pas le moment d’être enceinte.
En 2004, suite à des maux de têtes récurrents mon médecin traitant, me fait passer un scanner « pour me rassurer «, puis une IRM. Conclusion 2 méningiomes temporaux droit.
Prise de rendez-vous neurochirurgien CHU de Poitiers. Celui-ci décide de mettre en place une surveillance par IRM tous les 3 mois et me rassure en me confirmant que les méningiomes sont bénins. J’arrête immédiatement le traitement hormonal.
Ces 2 méningiomes continuent de grossir jusqu’à atteindre une taille de 31 mm et 23 mm.
The intervention is scheduled for April 24, 2007. Surgical excision takes place without problem. MRI control after 6 months and there stupor, there are 2 new meningiomas. Control every 6 months, one of the two is slowly evolving.
6 months after the intervention, I resume my work, I feel good, I am a caregiver.
In 2009 cholecystectomy.
Les maux de tête reprennent rapidement et en 2010 je décide de tenter le Gamma knife (radiothérapie) au CHU de la Timone à Marseille. Le professeur qui me reçoit confirme le danger de l’Androcur. Un des méningiomes, le plus gros, est nécrosé. Je mets 6 mois à me remettre de ces rayons. Très faible, je perds 10 kg.
My work is in a sawfall, I alternate with work stoppages. My superiors do not appreciate, it disturbs the schedules. I am on final stop in 2013 and claim a category 2 disability pension (barely half of my salary) dismissal for incapacity in February 2017.
I suffer more and more, headache, dizziness ...
3 new meningiomas appear. So I have 4 "co tenants" as I nicknamed them.
Medically, in September 2017 I am oriented towards the PRC of the Poitiers CHU. The oncologist prescribes an injection of Sandostatin (chemo) every 28 days. In addition to the Lyrica has prescribed since my first intervention.
The purpose of this injection is to control the growth evolution of existing meningiomas and prevent the appearance of again.
After a year, the side effects are felt. Tachycardia, epilepsy attacks, type 2 diabetes, hyperthyroidism…
Ablation of the thyroid in November 2019. (3 cancer nodules)
I take a long treatment like the arm, fentanyl, morphine, corticosteroid, anti epileptic, lyrica, beta -locking, diabetes, TSH ...
Et toujours des maux de tête, aphasie, nausées, vertiges, malaises en tout genre. Je consulte un Psy, ma vie bat de l’aile.
Hospitalization in Psy clinic for depression in June 2019.
Always an MRI every 3 months. And there the shock, a new meningioma settles despite the treatment…. It was during confinement, I was warned by phone.
The intervention took place on September 15, 2020, the left -wing temporo explosion.
Everything went well. I review the neurosurgeon and the oncologist in November with control MRI.
I suffer, I accept, I am not afraid of the hospitals exams ... but I'm fed up with this life!!!
I became another. I make "pretend" to be good, normal in front of others. It is a handicap that cannot be seen and that we do not understand.
I'm afraid to go out, to get away from my house ... fear of being sick, to make discomfort. I drive very little and in my comfort zone.
I am no longer independent, I am a charge for my husband. It's frustrating, injuring.
I am 6 adorable grandchildren, and I cannot keep them. I am not "reliable". I made discomfort in front of the older ones (they were afraid) I am always tired, and I have anxious if I have to keep them. I only sleep with sleeping pill. They are my most precious good and I do not take advantage of it, I who had planned so much love and activities ...
Even my life as a couple undergoes the consequences, I became tense, aggressive. And the libido, let's talk about it, on a scale of 1 to 10? 0 !!!
I have confidence in my doctors, but they refer the ball. A blow is meningiomas, a blow is the treatment ...
I am 60 years old and my life in there?
I am well surrounded, my husband is attentive, present and my two very close daughters, are nurses.
During all these years, I was afraid that my pathology will be hereditary.
J’ai pris cette merde d’ANDROCUR pendant 15 ans !!!
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