Patricia, 60, married, 3 children and 6 grandchildren.

My story may be a little confused, not easy to make beautiful sentences with the right words and respect the history. Please apologize. My "neurons" are not yet reliable and my view reduced! I am at J+35 of my second intervention.

First rules, I was 10 years old. Stopped by treatment, return around 14 years. They have always been very painful and irregular. I learned later that I had polycystic ovaries .

In 1992, 2 years after my last pregnancy my obstetrician gynecologist prescribed Androcur + Provames as a contraceptive. I also suffered from hirsutism and I took a lot of care of myself and my appearance ...

In 1996, pituitary problem controlled by treatment (I don't remember).

In 1997, my husband underwent a serious accident at work, he was amputated with both legs. My rules are definitively stopped. I stop taking my treatment for the pituitary gland because I have other concerns than to worry about myself, but not the Androcur and progestin ... not the time to be pregnant.

In 2004, following recurring headaches my attending physician, made me pass a scanner "to reassure me", then an MRI. Conclusion 2 right temporal meningiomas .

MAKE CHU neurosurgeon appointment from Poitiers. This one decides to set up monitoring by MRI every 3 months and reassures me by confirming me that the meningiomas are mild. I immediately stop hormonal treatment.

These 2 meningiomas continue to grow until reaching a size of 31 mm and 23 mm.

The intervention is scheduled for April 24, 2007. Surgical excision takes place without problem. MRI control after 6 months and there stupor, there are 2 new meningiomas. Control every 6 months, one of the two is slowly evolving.

6 months after the intervention, I resume my work, I feel good, I am a caregiver.

In 2009 cholecystectomy.

The headaches resume quickly and in 2010 I decided to try the Gamma Knife (radiotherapy) at the Timone CHU in Marseille. The professor who receives me confirms the danger of Androcur . One of the biggest meningiomas is necrotic. I put 6 months to recover from these shelves. Very weak, I lose 10 kg.

My work is in a sawfall, I alternate with work stoppages. My superiors do not appreciate, it disturbs the schedules. I am on final stop in 2013 and claim a category 2 disability pension (barely half of my salary) dismissal for incapacity in February 2017.

I suffer more and more, headache, dizziness ...

3 new meningiomas appear. So I have 4 "co tenants" as I nicknamed them.

Medically, in September 2017 I am oriented towards the PRC of the Poitiers CHU. The oncologist prescribes an injection of Sandostatin (chemo) every 28 days. In addition to the Lyrica has prescribed since my first intervention.

The purpose of this injection is to control the growth evolution of existing meningiomas and prevent the appearance of again.

After a year, the side effects are felt. Tachycardia, epilepsy attacks, type 2 diabetes, hyperthyroidism…

Ablation of the thyroid in November 2019. (3 cancer nodules)

I take a long treatment like the arm, fentanyl, morphine, corticosteroid, anti epileptic, lyrica, beta -locking, diabetes, TSH ...

And always headaches, aphasia, nausea, dizziness, discomfort of all kinds . I consult a shrink, my life is beating.

Hospitalization in Psy clinic for depression in June 2019.

Always an MRI every 3 months. And there the shock, a new meningioma settles despite the treatment…. It was during confinement, I was warned by phone.

The intervention took place on September 15, 2020, the left -wing temporo explosion.

Everything went well. I review the neurosurgeon and the oncologist in November with control MRI.

I suffer, I accept, I am not afraid of the hospitals exams ... but I'm fed up with this life!!!

I became another. I make "pretend" to be good, normal in front of others. It is a handicap that cannot be seen and that we do not understand.

I'm afraid to go out, to get away from my house ... fear of being sick, to make discomfort. I drive very little and in my comfort zone.

I am no longer independent, I am a charge for my husband. It's frustrating, injuring.

I am 6 adorable grandchildren, and I cannot keep them. I am not "reliable". I made discomfort in front of the older ones (they were afraid) I am always tired, and I have anxious if I have to keep them. I only sleep with sleeping pill. They are my most precious good and I do not take advantage of it, I who had planned so much love and activities ...

Even my life as a couple undergoes the consequences, I became tense, aggressive. And the libido, let's talk about it, on a scale of 1 to 10? 0 !!!

I have confidence in my doctors, but they refer the ball. A blow is meningiomas, a blow is the treatment ...

I am 60 years old and my life in there?

I am well surrounded, my husband is attentive, present and my two very close daughters, are nurses.

During all these years, I was afraid that my pathology will be hereditary.

I took this Androcur shit for 15 years !!!

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