Patricia, 47, 12 years old from Lotényl, operation with aphasia, paresies, 8 months of rehabilitation

Lutenyl landscape

Hello,

it's good I decided to testify, finally my brain was decided to work, yes there are days he does not like to do much in any case it is too difficult for him to make beautiful sentences with the right words.

First thank you to Sylvain my spouse, William our son, my mom, my dad.

I am 47 years old, it was my dad who found your association 1 year ago, at that time I was preparing for my meningioma operation on 28/11/2019. When I read the testimonies, I cried who confirmed to me that the Lotényl is his fault , for me I was going to suffer from a smoker cancer and I would have deserved it but there not just because I did not want any children.

I had my adorable son in 1999, at that time we started to tell me that with tobacco a pill would be difficult to keep. My spouse and I did not want a child in addition. I remember that in about my 35 years I asked my gynecologist to make me ligature the tubes and the disaster, I wanted to mutilate myself and that I could no longer have other children if mine died or if I rebuilt my life with another man who wanted a child !!!!!! All that I know, and you have to assume if they become a problem. It is my body and I am responsible for it even if I do nonsense.

So, my contraception started with an implant a lot more rules but to change the more good time than the 3 years max, so I went through a Mirena IUD. Oops my body does not want to have contractions.

How to do it? Still no ligatures…. So my gynecologist found the miracle, the lutenyl very well to twin with tobacco. What is a meningioma? Ah no, I was not told about it. And here is the Lotényl to nourish future tumors …… Advantage: no rules. Disadvantage: more libido finally anyway the gynecologist he doesn't care that I don't want to be normal, I get older, menopause arrives, when we don't know, but it's normal ……

we're going to get into the hard now, I stop showing my feminism from my mom who in the 60s in the 60s where women were more liberated than us and our youngest, I know that my opinion remains.

In February 2018, my left eye was inflated, but as a month before I had a Orgelet, I will not see the doc immediately. After ten days, I go there. My doc, great, receives me and immediately said to me: "No my darling, it is not a orgelet and it worries me, I give you an IRM in an emergency MRI. The afternoon MRI and there I am told that I have a tumor so I will immediately pass me a scanner, at the end of the afternoon I am immediately transferred to the emergency room. The emergency room reassures me a little by telling me that it is not cancer in view of the 2 exams, but will contact a neurosurgeon at the Sèvres hospital.

An emergency meeting with the neurosurgeon, explains to me where the tumor is, she uses the word meningioma and that there is no emergency to remove it, it is close to my fairly large optic nerve but which will have to be operated later. She asks me for the drugs I take, I forget my lutenyl… .. and she tells me no contraceptive? Uh if so lutenyl. And says "you stop immediately ", the lutenyl makes the tumor fat. Oops! Nice the condom !!! Ben not long because I had my ligature of the tubes.

I was followed in Sèvres, 1 year with regular MRI to see if the tumor decreased and no.

In 2019, life gave me to go to the meeting thanks to my spouse who took a new job. Heat and the
diversity



of this island . The game. During the operation, I had a meningeal hemorrhage and a brain edema. My spouse made the right decision, so the neurosurgeon made a decompressive craniectomy that saved my life, on the other hand I looked like Elephant Man Uh! Woman. No problem for me I am alive and it is the most important. On the other hand, as a result, I have paresis of the right arm, aphasia and a neurological problem (memory, the left brain which does not want to exchange with the law etc ...) due to the meningeal sylvian hemorrhage and the left frontal edema.

My surgeon, every day came to see me, explain to me every time what had happened because no immediate memory. He explained to me (more than once) that within 2 months he will put a prosthesis to replace the left half of my head bone, and that I would find a good part of my speech. He placed me in a day hospital at the Tampon for rehabilitation. I did not have depression, my character moved my brain because for me not possible not to find myself as before.

My rehabilitation lasted 8 months, less covid (2 months). The 2 months between the operation and the future prosthesis, I had incomprehension of what I was told and I could not express myself, what I wanted, that my brain informs my body upside down. And there, thank you to Appoline my speech therapist who helps me with all her heart to understand me, to Cecile my occupational therapist with her kindness and understand me, my physiotherapists! I don't like sport and I didn't want to do much, at Yasmine my neuropsychologist who worked my memory and make my 2 brains work together. Thank you for these 8 months of attention that they brought me.

February 2020, my neurosurgeon poses the prosthesis to me, and this is the beginning of the miracle. I speak !!!!! The holidays are over for my parents and my spouse. So I'm talking about it is rather me at 4 years old when I was a child but at least I could express my evil, my pain, what I wanted and a desire to speak all the time.

Today, I always fight with my brain to move, that I have not yet resumed my 100% before, I am 80% 90% and I do not support it. I am a woman hired for my life, to find my old job, a woman with a strength of character. May my brain stop tiring me that he comes out of the good words that finds them where he stored them that he stops giving a word that has nothing or the other way around what I mean. I am the leader of my body and not him !!!!!

All this is disgusting due to a progestin that I did not need it !!! No ovarian cyst, no acne, no endometriosis, no other other other tobacco but the solution, my solution was the ligature of the tubes. Stop to say benign !!!! Because we don't get into cancer! Sad for all these people undergo cancer I am wholeheartedly with them. My tumor is not cancer but who rots my life.

Fed up with being in a patriarchal system, there are only women who must assume the design. No one informs the population that men can make a reversible operation!

Other testimonies here