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TESTIMONY. Suffering from a brain tumor, it implies a progestin drug
Fifteen women gathered, for the first time, in Saint-Herblain, to testify to their journeys after the treatment of a meningioma, a brain tumor. One of them, Marie-Sophie Dupont, says "a year and a half of medical wandering".
Marie-Sophie Dupont, former communications manager of the CFA of Saint-Herblain, recounts the long and painful course after her operation of a meningioma. | Ouest-France
Ouest-France modified on 12/13/2022 at 5:10 p.m. published on 12/13/2022 at 9:58 a.m.
Marie-Sophie Dupont was the dynamic responsible for the communication of the CFA (Apprentice Training Center) in Saint-Herblain. In 2019, following very strong migraines, it was diagnosed with a meningiomal caused by taking progesterone.
"A few days before the CFA graduate evening, I was taken from unmanageable migraines. Hospitalized in an emergency, the MRI shows a tumor in the brain, linked to taking medication", says, with emotion, Marie-Sophie Dupont.
"I was cut off from the world, I couldn't do anything after the operation"
One month of waiting before a delicate surgical operation. The operation is going well, but postoperative complications and consequences leave Marie-Sophie by the road. "It was like a road trip! I could do nothing, read or look at a screen. I lost the taste and smell irreversibly. A year and a half of medical wandering. I was cut off from the world ..."
Very surrounded by her family, Marie-Sophie practices meditation and walking, while managing her energy in all the gestures of daily life. “After surgical intervention, you feel dropped in nature.” Physical and psychological consequences cause isolation and suffering throughout convalescence. The exit from the road will be completed by the advertisement, on the phone, of its disability by the doctor of the Primary Health Insurance Fund.
[In Saint-Herblain, fifteen women with meningiomas shared their testimonies within the Amavéa association.]
In Saint-Herblain, fifteen women with meningiomas shared their testimonies within the Amavéa association. | Ouest-France
Lotéran, Lotényl and other progestins are concerned
Today, Marie-Sophie Dupont is the regional delegate of the Amavéa association which has supported, since 2015, the victims of meningiomas due to Androcur, Lotéran, Lotényl and other progestins. These three drugs may have, as a side effect, the development of brain tumors called meningiomas. Often designated as a benign tumor, meningioma hides a disease that has nothing benign, with consequences such as loss of language, mobility, smell and taste.
Bringing together the testimonies of the victims, the Amavéa association creates a mutual aid network and wants to promote the dissemination of information to patients and the medical profession. “The risks of meningioma linked to Androcur have been known since 2007, but the National Medicines Safety Agency (ANSM) has informed doctors and patients in June 2018 ″, specifies Emmanuelle Mignaton, the president of the association. Building on a scientific council made up of doctors and surgeons, AMAVAA disseminates information and testimonies, stories of life seriously by meningioma.
