My name is Isabelle and I was under Lotényl for 20 years ... from 2000 to 2020 approximately, until my gynecologist taught me 1 year ago that they no longer prescribed it because it had been removed from the market.
I spent a brain MRI on October 7, 2021, at my request and with great insistence with my gynecologist who had told me since 2020 that it was useless, that the number of cases was tiny, even insignificant, that it was not proven that my increasingly violent and frequent headache were linked to that ...
I had already asked him to spend one in 2020, without success ...
In short, I obtained the report with a lot of difficulties (I was not recipient at the start), by claiming it from the gynecologist, I received it like that, under envelope in my mailbox ... without a word of explanation and I do not tell you the shock!
I also obtained the interpretation of the images of MRI from the neurosurgeon doctor for whom I work, asking him to clear them a little "by chance", as I left with the CD of the Imagery Service without any explanation ... And if I had not worked in the neurosurgery service ?? Everything was overlooked, I would not have been aware of nothing ... I am completely stunned.
It follows that I have 7 or 8 meningiomas of various but not negligible sizes, the biggest making 28 mm anyway !! There is also a bone attack, I saw another neurosurgeon specialist in the skull this morning who made me an appointment with an endocrino, a pain doctor, who will make a pharmaco-vigilance declaration, announced that it would take monitoring by regular and annual MRI for the moment, the next being scheduled in 4 months. He will also ask for a brain scanner thereafter ... In short, I am not one of the “tiny and insignificant cases” is said to be saying…
And to date, the worst, no contact on the part of the MRI "prescriber" gyneco, he never contacted me of any way, it is a real shame !!! And the worst part is that following the pre -market the lutenyl… He prescribed me ... Another progestogen instead, which I have been taking for 1 year ... We walk on the head !! The neurosurgeon that I saw this morning, asked me to stop him right away, even today!
This is basically my story, that I could have ignored a long time if I had not worked on the spot, in good service ... We saw each other in a year with the gynecologist, as if nothing was, and he continued to prescribe his new pill find annually, still for how long, and I was happening to me in the end ??
Gynecos seek to suffocate the case, change their conversation as soon as the subject is tackled, minimize this progestogy fiasco ” .
