Sandrine accepted that the association publishes her emails before informing and reassuring women in her situation.

On 21/10/2021:
Hello, following visual disorders we have just detected the presence of fifteen meningiomas distributed in the set of my brain, including a larger (3 x 2.5 cm) which compresses my optic nerve and which makes me lose my peripheral vision. After two visits to two different neurosurgeons, there is no doubt that the taking of nomestrol that I took for 20 years is the source of this discovery. Of course I am strongly advocated a surgical intervention to take this meningioma out but I admit that I am still very reluctant to this idea.

On 25/11/2021
I come back to you to give you my news ... It's been a little over a year since I was discovered a meningiomatosis following a prolonged numegestrol taking.
Following this announcement, I stopped my treatment in September 2020 and went quarterly by MRI and visual field.
I also had to take blood lining monthly because a voluminous meningioma supported me on the optic nerve but also on the pituitary gland which caused me a
general disruption.
The last MRI that I made this summer, so barely a year after stopping the taking of Nomestrol, showed a minimal volume improvement in all meningiomas.
My neurosurgeon therefore decided to leave me an additional 6 -month respite and wishes to see me again with the result of a new MRI and visual field in January 2022.
All this to tell you that I did well to insist with my neurosurgeon to delay the intervention and wait to see what will happen after stopping treatment.
Do not lose hope and be patient.
I will keep you posted on the result of my next MRI but I am very confident.
Thank you for what you do.

On the 28/18/2021
If I share my experience with you it is indeed to show that it is imperative that you do not rush towards the intervention , you are right to insist and to explain that we do not die from a meningioma, that it does not matter ... It is just something difficult to accept and manage, it is "boring" for everything that arises ...
You can put my testimony on the site, would not yet know what to have, to have an operation or not ... it is imperative that it is waiting to see the effects of stopping treatment.

Note of the association : a meningioma, depending on its location and its size, can have serious consequences on life (and being fatal, most often when the operation goes wrong, or if the epilepsy that it can cause poses concern). However, it is acquired now that the stop of progestin treatment can make them regress.

See here for studies that prove possible regression: https://amavea.org/etudes/