Isabelle- 48 years- 1 Méningioma operated- Diane 35 and Sterilet Mirena
The dangers of contraceptions
Explanations of photos….
June 1, 2018, I woke up by a "madam, wake up, open my eyes” very firm.
Painfully I open my eyes and see our room filled with firefighters and my livide husband on the side of our bed. A very strong pain on the left shoulder bothers me. The firefighters put me on a stretcher, and I go for hospital in my city under the worried looks of my husband and my children. I had made my first Tonico clinical epilepsy crisis (convulsions)
Arriving at the emergency room, infusion to reduce pain, radio, scan the exams are linked. My husband arrives, very worried. After a while, I am told that I am transferred to neurosurgery with the nearest CHU. Shooted by morphine, I do not wonder about the destination of the service for a shoulder mail ...
Later in the day, I redo a new epilepsy crisis. I wake up in the night, my husband sleeps on a folding bed near me.
The internal had announced to him at the end of the day, between two doors in the corridor, "your wife has a brain tumor" as if he had been told that I did not like goat cheese. There are no words to describe the attitude of this intern!
The next day, I see my parents and parents -in -law in my room. With hindsight, I remember their drawn features. They knew what happened to me.
End of the day, passage to MRI and then to the operating room to give me my shoulder disabled in place. The anesthesiologist was going to fall asleep when a person was running in the room. Suddenly, she announces, the lady should not be put to sleep, she has a brain tumor! I let you imagine the effect of this nuclear bomb. My thoughts go first to my two great children who were not spoiled by life in 2002, and to my husband and our son. What am I doing to deserve this! I thought I had eaten my black bread in 2002 when my first husband died, but life is bent against me,
I wake up in my room and I grab my phone to call my husband in tears. He arrives twenty minutes later, and the neurosurgeon on duty announces the presence of a 2.5 cm meningiom in my brain in a official way.
The week continues with its epilepsy attacks, once stabilized I am back home, my arm in a sling for a month.
After the shock of the announcement, an appointment is planned with the service teacher ten days later. We are announced a 3.5 cm tumor, and that it was necessary to make the decision if I was operated on.
After requesting a second opinion, analyzing the pros and cons of the operation (risk of paralysis and loss of speech), passing through the notary to verify that everything is in order, the decision of the operation was taken.
On October 16, I left the house in tears towards the CHU. I did not know in what state I was going to come back!
The next day departure with a very difficult block, leaving my husband was a heartbreak.
I was asleep in tears in the operating room.
A few hours later, awakening in intensive care, I shed tears of joy when I realized that I could move my members and speak!
After 24 hours, passing through a classic hospital room, where I metmorphosed into Rocky as the days go by…. I felt like I went under a steamroller!
A week later, here I am at home! The convalescence begins in calm ... We have an appointment with the neurosurgeon a few weeks later in order to know the result of the tumor's analysis. We experienced a large relief at the announcement of the result: grade 1 tumor, no rays to be expected!
The neurosurgeon who operated on me is very professional, he took the time to explain the situation to us at each appointment. His secretary with her smile, has always made us welcome. The entire neurosurgery service team has been extraordinary, it is devoted to patients! Like what, do not hesitate to go to public hospitals
Since then I have recovered very slowly despite the after -effects: problem of speech, memory, fatigability, sensitivity to light and noises, return of epilepsy seizures, therefore more driving license, sleep problem (my brain has not been disconnected and it always cogitates ..), reduced mobility of my shoulder, loss of my job within a month. As I was told at the Safely, it doesn't show that you are sick! I asked for disabled worker recognition because I don't know if I could find a position with my skills.
I always have the sword of Damocles above the head, there are white traces in my brain with MRI, and these epilepsy attacks that come without screaming! It's stress that is not easy to manage for me and my family
A big thank you to my husband, my children, my family, our friends for their supporters during this period which unfortunately is not over.
Without all you, I don't know how I would have supported it all! You have given me the strength to continue, listening in difficult times.
All this is from the contraceptives …… We must inform women of the risks linked to these drugs (Lutenyl, Luteran, Androcur, Nomigesrol and others) . Many studies of which Professor Froelich exist in order to confirm it.
For our Minister of Health, Ms. Buzyn, it does not matter because we do not die! May she go to be cut off and undergo what we experience after the operation, what our loved ones feel and afterwards.
The CPAM to send a letter to women who have taken these “drugs” in the past two years in order to inform them of the risk of a tumor. Some health professionals minimize info….
You can see other testimonies such as mine on the site https://convalscecence-meningiome.fr/category/temoignages/
I hope you read my message and talk about you because this disease is slow (30 years for me) and when what the rose pot is discovered is too late.
Note of the association: Information letters sent to the patients in question here concern, for the moment, on September 2, 2020, only women who have taken Androcur (and between June 207 to June 2019). For other molecules the discussions are underway.
Isabelle- 48 years- 1 Méningioma operated- Diane 35 and Sterilet Mirena
Other testimonies on the site here
