As promised I come to bring my little stone to the building by adding my modest testimony.

Before the discovery of my meningioma I had funny symptoms. I heard my heart beat in my left ear. I spoke to my doctor who prescribed an echo of carotids and send me a cardiologist. The latter also told me that I was sensitive even if I insisted that the tinnitus I knew, but that these tinnitus were still very strange. I learned later that it is a symptom of intracranial pressure. I also had moments where I did not recognize the places where I was and sometimes even people. But for the latter it only lasted a few seconds. I had to end up talking to my doctor when the events caught up with me.

I discovered my meningioma on December 4, 2020. I spent the day drinking water, I thought I had diabetes so I was thirsty. I felt strange all evening and breathless and asked my husband to sleep our 5 and 8 years old boys. During this time I called the emergencies because I thought I had the covid. When the ambulanceter arrived I vomited water (the almost 2 liters bus in an hour according to my husband because I did not realize it). I went up to the ambulance by myself, I stood a little (vestibular vertigo that has not left me since). I laid down, she asked me two questions and presto black hole. I was made scan and MRI in stride without my realizing it and in the morning very early they still managed to wake up to tell me the news. A very voluminous right temporal meningioma extended to the 4 cm cerebellum tent from all sides . I was transported to Bastia hospital in the neurology department where I was operated on on December 9, 2020.

The operation saved my life, in my case it is obvious there was no other choice. I had no hormones to stop (since I never really took it). The intracranial pressure was too large and very large edema. The whole tumor was fortunately withdrawn and I am in a simple follow -up. That is to say an MRI and go to the neurosurgeon once a year. Yet nothing is quite simple for me and for a year after the operation the few hopes I had to get rid of the consequences due to meningioma itself (intracranial pressure) and the operation have largely passed out even if I always hope for a better ...

To start dizziness ... well when I am standing I always look like a reed pushed by the wind and I need support otherwise it quickly becomes annoying, I don't move my head too quickly either by walking, I almost fell on several occasions. I recently stopped vestibular rehabilitation I prefer to do it at home since it is enough to get lost and I do not see a great improvement.

On the cognitive level , well things do not advance much at least at least at the moment but there I do not want to be too radical either because I started a short therapy of neurological hypnosis (I am at my first session) which in an incredible way to cause changes in my slow waves which went from 14 to 9 (5 being normal) and short (stress) Speech therapist with the neurofeedback which was quite impressed, and we are both awaiting the next appointment to see if it continues because from my slow waves sound raised but the short they are around 4.

For hemiparasia, well for my attending physician it is rather a sequelae of the operation even if my neurosurgeon thinks that it was the epilepsy that caused it. Personally I think like my doctor, anyway she does not seem to evolve and she is not really disabling because light (I also stopped the physiotherapist for that and I do it alone).

The slight deafness ... Well there I have not yet seen the ENT but to review in late January and we will see if it is necessary to set sail, he wanted to wait until everything was stabilized before.

Fatigue ... So she must say that she has been slowly for 1 month when 2 for my greatest pleasure. I'm not saying that I don't have a pump but the absolute need to have to take a nap.

And finally epilepsy ... because yes indeed this hombre hops over me with a promise of antiepileptic drug which are really abrupt. Because everything I talked about above will surely be undermined by these super drugs. For the moment I have an EEG with the epileptic hearth on the right (where my meningioma was). My doctor sends me to see Professor Bartolomei Fabrice at the Timone (appointment on January 19) and obviously if I really need the treatment I would do a reason but at least I would be dealing with a person who knows what she is talking about.

It has been a year for a year that I had an operation, a year that I mourn the one I was and that I learn to live with the one I have become but despite everything I will well because I can do the essentials ... Take care of my children I try to put into perspective I am not the most to complain, I know people who have had much worse than me or who is still hoping.

I hope that my testimony will provide answers or indices in the absence of a solution to those who ask questions about meningiomas.

Good luck to everyone.