Claire, 54 years old, 10 years old in Diane 35 and 2 years of Lotényl, 1 meningioma, 2 operations
For me, meningioma is of the past. But I discovered the ravages that hormones have caused for 60 years and the invention of the pill! Here, I understand why I suffered so much and why so many women suffer.
A toubib prescribes the miracle pill in Diane 35 to 17 years for medical reasons: you suffer from polycystic ovary syndrome or sopk, you have oily skin, acne, overweight ...
For 10 years, you swallow it, it and other pills of the same kind ... You do a baby in 1994, a miracle according to the many Toubibs that you then consult in 10 years, pregnancy, despite taking Lotényl.
7 false layers later, at 32, another of these Toubibs tells you that it is finished, that you are almost menopausal, that it is no longer worth taking contraceptive. During the following 17 years, you will always have menstrual cycles, sometimes irregular, but very present, but without the danger of a pregnancy.
And around 45, you start to have neurological concerns, weaknesses in the legs, cervical pain, atrocious migraines and neuropathic burns that lead you to serious depression. You can't do anything without suffering, you see 5 general practitioners and 3 specialists, including a rheumatologist, and you hold osteo, physiotherapist, acupuncture.
Wearing a Minerva, a lumbar belt, taking high dose morphine, powerful neuroleptics, paracetamol, sleeping pills ... that's all you do for you. Your atrocious migraines will ultimately only lend one general practitioner that you find after a final move and which gives you the appointment that you should have prescribed you for 4 years: a consultation with a neurologist and an MRI of the skull in stride. 5 weeks of waiting, with the same drugs that poison you.
17 years after the stopping of any progestogen hormone, you have an epilepsy crisis while driving , in the most dangerous turns of your village, above a railroad, entering a physiotherapist, a beautiful evening in October 2015. Skull that explodes with pain, loss of sight of the left eye, emergencies, scan ... You discover the word meningioma . And the photo that goes with it on the photo of the cranial scanner.
The thing is the size of a man's fist. We program your ablation for the following week. You have lived since 17 with a time bomb in the skull, because this damn thing is developing because of the taking of progestin hormones that you have swallowed for years ... Three hospitalizations, two heavy operations, a destroyed skull and instead of the enormous non -cancer mass, liquid ... Some sports are prohibited, because an infection has destroy hair. You are lucky, the 53 staples did not leave too many traces under your gray and short hair ... You alone smell the bumps and the hollows, the dead areas of your scalp.
We discover, for long appointments in neurosurgery, with 3 different neurosurgeons and neurologists of the Limoges University Hospital, that the “departure” of the tumor has been changed. Mentally and physically. She supported at least 15 years on areas of your brain which are slowly recovering. You don't like certain things anymore, but you don't hurt anymore. You get rid of morphine by a wild weaning, all by itself, and for 6 months, more pain nowhere.
And then the migraines come back, the disorders of the concentration too ... and the neurological pain amplify the other pains. A neuralgia of Arnold already existing, but paused by morphine for 2 and a half years, wakes up ... You no longer want neuroleptics or morphine in your life, then apart from ibuprofen, you take nothing ...
And for 4 years, you run the neurosurgeons, and the third is the right one, it makes you the scalp injections, Nape, shoulders ... it works for a few weeks, and then the pain comes back, throbbing, disabling ... But you have resumed swimming and walking in the forest, the only sports that you have the right to practice because of your fragile skull. You are forbidden to bang your head. And you plunge back into the sea, you go down less deep, but you spend long hours practicing snorkeling, and filming seabed in summer in Brittany.
2020 You finally discover, 5 years later, why you have developed this meningioma and why he changed the chemistry of your brain so much, and you left this neurological condition which has done that for 4 years you have almost permanently or almost ... you take an ibuprofen when the pain makes you crazy between two Botox injection session in the hospital. You have trijumeau neuralgia attacks which poison you for 4 months. And then it goes, you go back through the weaning box of the teetrol, a powerful neuroleptic who caused you another nervous depression. Confainment is for you a ordeal, because you can no longer swim! You walk to compensate. And what we predicted to you 17 years earlier happens: menopause, at 54 years old. You take 10 kg in 6 months. And one morning, you discover this group, and this page ... Your brain tumor was due to the taking of progestins.
Thank you to the association for its support. I got out of it, even if I live with the pain. But thousands of women host meningiomas in their brain because they have been prescribed hormones to treat them with years rather! If you are a woman under pill, Lotényl, Androcur or Lotéran, read the publications of the Fan page and if you are concerned, join the group and the association. You have the right to know which risks you will run and perhaps understand what your pains, disorders, disabilities are due ...
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