Christine, 63, 2 meningiomas operated

Christine, 63, operated on April 1 , 2022 by Dr. Aldéa at the Rotschild Foundation

I share my experience with you. It all started at the end of January 2022 : I fell without any reason violently by walking quietly on flat soil: loss of balance. No headache, no other symptoms. My attending physician prescribed a brain MRI as a precaution and, then everything went very quickly! I did the MRI on March 4, 2022: 2 frontal meningiomas, a left olfactory meningioma of 27 mm with edema, a second right para-sagittal meningioma of 18 mm with greater edema. In an emergency, I was able to have an appointment with Dr. Aldéa the following Tuesday (March 8, 2022). I infinitely thank my attending physician and his responsiveness.

Accompanied by my husband, we went to this appointment at the Rotschild Foundation. Dr. Aldéa studied for a long time the images of MRI and, the diagnosis "fell": due to the edema and the volume of the 2 meningiomas, there was an operating urgency. Dr. Aldéa proposed the excision of these 2 meningiomas during the same intervention. In addition, cortisone (which contains edema) is prohibited to me due to a corneal herpes of the right eye (with which I have "cohabited" for 35 years). The professor who follows me for this herpes also exercises at the Rotschild Foundation (it's a chance !!!). We immediately accepted the 1st date that Dr. Aldéa proposed: 2 weeks later, on Friday April 1, 2022. Due to my various medical problems forbidding me cortisone, I did not take 2 nd reviews: I rushed and I trusted. Dr. Aldéa is adorable, available and very attentive.

I felt very surrounded by the medical team before, for and almost a week after the operation. This went very well: 3 hours of intervention, excision of the 2 meningiomas, no pain, no headache neither before nor after. However, I felt a lot of fatigue during the 1st post -operative month I also had many emotional disorders : as if I had no protection, no emotional barriers (emotions of all kinds, positive and/or negative). As soon as I wake up, tears flowed like a "too full to empty" without feeling any feeling of sadness, just emotions to let "go out". All the emotions that we usually feel were amplified exponentially. This necessarily disturbed those around me: my husband and my 4 big boys - 25 to 35 years old). I explained to them my need to feel surrounded, reassured of their love ... They were great and were very present! Thank you also to my husband who, in addition to emotional protection, managed everything at home.

Today, it is better both emotional than in terms of fatigue. I still remain fragile ... I am very satisfied with the operating process but experience regrets regarding the lack of medical support in post-operatively . Once out of the post-operative week's control period, I couldn't get in touch with Dr. Aldéa and have advice for my convalescence and post-operative effects (it could have been an assistant from Dr. Aldéa ...?), Because I know that he is overwhelmed. I would have liked to know more about my emotional disorders: was it "normal", temporary, frequent, should I have to live like that forever? I was worried, my entourage too ...

In addition, at my request from the secretariat, I was finally able to receive the results of analysis of my meningiomas about 1 month after the operation. I was very impatient and stressed: was it cancerous? This stress is due to my story. I apprehended to have to relive cancer with its treatments. Indeed, 15 years ago (in 2007), I had cancer of a vestical cyst located in the peritoneum (recto-vaginal wall) treated by surgery, radiotherapy, chemotherapy and curiousherapy. Having had a "forced" menopause-ovaries burned by radio and curdyetherapy-I took Utrogestan (I no longer remember the duration or the doses). It is possible that this medication is the source of meningiomas ...

I had no medical support for understanding the analysis of the results (vacation period, no MSG from Dr. Aldéa, attending a doctor on leave for 2 weeks). Fortunately, I was able to find someone competent for this reading thanks to my network of relationships: everything is benign! To have support from Dr. Aldéa, I would have had to wait for the post -operative appointment scheduled 3 months after the intervention: it's extremely long!

Next steps: Resumption of my work on June 5, 2022 (I am delighted because I love my work, and, fortunately I work part-time), and control MRI on July 8 in order to monitor the evolution of edema and, finally post operative appointment scheduled for July 12, 2022 with Dr. Aldéa. According to him, edema should disappear since meningioma no longer rely on the vein. I hope it strongly !!!!

I hope my testimony can help some of you ... good luck to all