Carine, 46, gives us news (1 meningioma, 4 operations)
Hello everyone.
This little message first to tell you that I am thinking of you .. who are sick but alive and it is essential ... I will have yelled at me to hear this due to my "fragiles" (and yes I am not talking about consequences, I became optimistic that is what makes me live and keep it)
you have certainly read my testimonies on the site of the asso where Facebook .. And I did not know if I went not to do worse than all the difficulties that each of you had.
So I did surgery by Gamma Knife in November 2019. It turned out that it was detected in February a poor blood circulation of the operated area. For reminder I had a 5 cm meningioma located on the main vein of the brain with compressive edema (we only saw a hemisphere in MRI).
In May, MRI again (I had already done 1 in December to control the gamma especially knowing if no edema, then in February) I am well followed at the Lille CHRU but that is a lot of MRI but hey ... Well my brain has recreated a new brain blood circulation (we knew it) the problem is that the bloody blood goes through the veins while it must go through the arteries ... If an exceptional convoy heavyweight passed on a small country road ... At one point it does not pass anymore !!!
Well, I go back to the car explained all to my husband (he couldn't go back because of the covid) I am emptied ... like us every time ... But I'm used to it I am also emptied when we receive at home .. But the world around me carries me and it seems that I also wear them from my joy of living even if fatigue reads on my face ... So I would
know that I was I will have to be operated again .. 12 HD operations: we cut the general circulation of the body, we hurry to put stents, prosthesis to force the blood to pass in the arteries and presto after we restore my circulation ...
I will be like Robocop dixit my son who does not lead.
I admit to being afraid as every time I pass from MRIs (like you) I have become phobic in the hospital .. I will make myself sleeping I know that I will wake up because I trust my neurosurgeons ... But I do not know how I will be ... I do not consider any motor sequelae I do not want to think about it. But I have 2 options like we all beat or drop it. I choose the first. After TT I underwent an embolsation, the next day the removal of meningioma, 3 months after 2 Pontages Arttero Femoral (my femoral arter was damaged during the embolsation)
I have pierced the hole of the SS for 2 years. ???? But after all, I have never been sick before. I don't know that the last chance operation will take place. In addition, it is announced in May that the balance is 2cm9 (I had remained over about 1cm during surgery by gamma knife) beyond more gamma and then this damn reliquat m likes so much that Im S is anchored in the longitudinal sinus upper with lots of blood vessels around)
Know that nothing is impossible ... I look forward to finding my work that I love but I think it will not be before at least 1 year !!! I who was a head and autonomous woman !!!! But I live the little moments and surprisingly I appreciate them ... I am not angry ... and I do not want to force myself to have a feeling vis -à -vis this… I am positive and I trust the specialists…. I am no longer angry it was a long job and I did white nights Al announcement of this very risky operation but I chose the option to fight so I shouldn't be laid ... I'm just afraid of losing all the progress I have made ... I just have to be in this hospital room but I am not afraid of the rest ...
Never doubt ... I am not a surwomen, my husband is too heavy I see my shrink who is a great person
this testimony just to tell you that nothing is impossible despite our moments of doubt, our anxieties, our weaknesses and our despair .. Full of positive waves to all of you ... A fight at the same time, is both that is that which matters
to all of you and all ❤
Carine
Excuse for faults it is still one of my weaknesses (even if I was a pro conjugation and grammar) but it was before but we always find ourselves a little positive the essential is to look for it ...
Carine, 46, gives us news (1 meningioma, 4 operations)
Carine's previous testimony is here
If you want all the testimonies: https://amavea.org/tag/temoineage/
