Today, I decided to take my pen in order to transmit my experience in the face of the catastrophic announcement last June (2020), following the discovery of various symptoms which we alarmed at the time my doctor at this fact, she advocated me to carry out a brain MRI in emergency ...

and
on this day of Tuesday June 9, 2020 was engraved in red ink the verdict of this exam ... Radiologist, I told myself that it was not possible ... that I had time to prepare for the possibility of being operated on to take away all these voluminous meningiomas which settled very kindly inside my skull without screaming. .. For many years. ..
He immediately informed me, my situation was an extreme urgency to consult a neurosurgeon ...
At that moment, my life changed in horror to learn that it was my last month of life, it was necessary at all costs that I was going to make an appointment at the Rothschild foundation in cerebral neurosurgery ...

I went there but I could not meet the neurosurgeon, the one who saved my life and that I named my angel ???? Guardian The appointment was scheduled for Thursday, June 11, 2020 at 2 p.m., himself notified me that it was urgent and imminent that I had to operate as soon as possible ... seen, the meningiomas were too large (2 on the left side of the skull and 1 minimal on the right side) and in addition to that I informed that I had declared in mid-December 2019, a deep venous
thrombosis Then, I tell him that I took the pill “Luteran 10 mg following the context of a genetic deficiency factor V Leiden who a priori providing this pill which was supposed to protect me against any possibility of provoking a phlebitis…
At this precise moment, I felt incomprehensible anger in the face of this treatment which destroyed my life !!

If my neurosurgeon, Dr. Sorin Aldea would not have operated me last year, I would not be of this world !!

Of course, you have to know an important thing concerning the brain operation, Dr. Sorin Aldea has taken all the necessary measures so as not to lose myself during the intervention, I was admitted to the NRI service so that he could insure me an element in my organism being a "cellar filter" which compensates to intercept the blood clots which were located on the right lower limb.

I want to specify an essential point concerning the installation of this filter cellar, I was received by a surprisingly disrespectful surgeon towards me, he allowed this doctor to abode on it because he could not insert the filter as he wished given my state at that time, I trembled from head to foot without being able to control this doctor with the power of these words that I was I if not I was going to die. .. This word, I heard it so much several times since June 9, this character, I found him inhuman .. to pronounce these words so cruel .. I admit I had one desire was to escape but I could not do it.
The anesthesiologist and the nurse were very responsive given the situation I was in, they understood that I was very afraid and knew how to find the words just to calm this horrible being ...

And the anesthesiologist inserted me a product so that my body can find stable fullness.
Very bad memory of this practitioner ...
He should take lessons on pedagogy, how to behave towards his patients. He did not take the time to understand me that I was in absolute panic.
Because the next day (Friday, June 26, 2020), I went to the operating room to undergo a craniotomy ...
I do not remember their names but in any case I want to mean all my gratitude to them, they were very considerate with me.

I thank Dr. Sorin Aldea very much and his team that were with me during my stay at the hospital of the A. de Rothschild foundation, I stayed there from Thursday June 25 to Friday July 3, 2020, that day I was transferred to the Bobigny physical and rehabilitation center for 10 weeks.

I also wanted to share my gratitude with this exceptional neurosurgeon “Mr Sorin Aldea”, which I highly recommend if you are looking for a practitioner in the field of the brain.
He is a pedagogue, human and above all he has a benevolent soul towards his neighbor which is an incredible quality these days, it is a respectful being, attentive to his patients.

I could not tell everything today my testimony since I feel so tired ... In my head it starts to get confused and I feel the vital need to take a break.
I will come back to the site to tell you the rest of my story.

Thank you in advance, Emmanuelle and also your team for being present by my side, your initiative for having created this Amavea association is sensational and very instructive.

This is important communication This allows us to move forward together.
To support us, to know that we can converse on our needs of what we are experiencing because of its meningiomas which has changed us all in the unknown and the horror to learn to live with ...

Hello after -effects after the operation ...
For my part, I have a lot and I try to manage them as I can but it handicaps my daily life, the fact that I am very well surrounded by my therapists and doctors is essential to be understood and supported by them.

Nevertheless therefore, my current life seems so difficult, complicated and complex to do every daily tasks ...

If I had known all its parameters upstream, I don't think I would have been operating..

I will list them, the list is long:
"Since my brain operation, here are all the pathologies that I meet and which are present in my current life"

1) Neuropathic pain concerning the trigens and acoustic nerves as well as the one behind the neck which connects the cervicals on the left side ...
2) I am constantly tired, all the time want to sleep ???? “Drowsiness”, hearing aid in the left ear.
3) Elocution problem, to express myself “thinking of an image in my brain and the word that I pronounce not being in adequacy with the thought image”.
4) I can no longer perform several tasks at the same time.
5) Reading is a dilemma, I do not understand the meaning of history and I have to take it several times before capturing the subject "in my previous life, I read a lot of different things and it was an addiction to be able to discover and learn, enrich new knowledge" now it supports me to open a book….
6) My understanding, concentration, and memorization are so complex and complicated daily.
7) Inattention during conversations “I pick up very quickly”.
8) Sleep disorders, untimely awakening, nightmares.
9) Ankylosing pain at the level of the lower and upper right -of -law “stiffness, numbness and tingling”. “Enburous” state meaning loss of balance by walking “.
10) Impossible to project me into the future” on days, weeks and months represent nothingness, vacuum ”.
11) From time to time, I am in my silence.

What, I have just listed you, many people do not understand my handicap which is difficult to live and manage on a daily basis...

Sometimes I wonder when I will find a normal life, constantly living with all his suffering ...

Admittedly, I built up a rampart with my doctors, therapists, it gives me well-being and it is reassuring to be surrounded as well.

Casually, I'm not bad ...
Here is the list: physiotherapist, osteopath, speech therapist, IDE, clinical psychologist, nutritionist, phlebologist, ophthalmologist, gastroenterologist, general practitioner, ENT, cardiologist, phlebologist, cerebral neurosurgeon and a surgeon in NRI.

In addition, I would like to warmly thank the surgeon in NRI, “Dr. Hocine Redjem” during the two consultations I had with him, he reassured me about the pose of the cellar filter and he took his time for all the questions I asked him on this subject.
He is humble, human and the sparkling look, pedagogue, nothing to do with the one who put the cellar filter to me.
I was delighted to know this doctor, his colleague should take lessons of humility and humanity from Dr. Hocine Redjem.

Thanks to my two speech therapists in neurologies, Ms. Valérie Courtial and Ms. Severine Denoël, they offer me tips to restore the connection of my brain.
The work is focused on the following points:
1) Guidance related to my daily activities “How to relieve reading attention, working memory load).
2) Divided and double task attention.
3) A better understanding of my cognitive profile and my possible adaptations.
4) The elaborate language, linguistic development, synthesis of verbal information
. left coronal and meningioma of the left orbit….

With my physiotherapist / osteopath:
his care about me are as follows:
1) Functional rehabilitation sessions of the spine and the lower limbs.
2) Balance work
3) Movement synchronization work.
4) Respiratory work and muscle building.
5) Rehabilitation of ATMs and also from the Cervical Region.

And to close this story, I feel a deep sadness ... The fact that I was abandoned by my companion, it devastated me and annihilated ...
In addition, I saw nothing coming ...
No explanation on his part of this situation which inflicted me ... Looking on my agenda, it's been 3 and a half months that our relationship is finished ...
it was such an emotional shock ... to live a situation like that ...

Inside me, I know that I will get up from all its trials that I am going through and fortunately I have gold friends and an adorable brother!
Being for me, the best gift in life!

Thank you very much Emmanuelle for your support as well as your team, I find you all wonderful and exceptional.
Take good care of all of you and I am happy to be part of your AMAVEA association.

Addition of October 21, 2021:

I resume my pen to express at the moment my observation of my life, after my brain operation which handicaps my daily life.

Here is what I currently feel:

-The feeling having come at the end of my existence, intensifying this feeling of absence of life; I do not know when this imprisonment of the tunnel will end, I wonder when I will see the light, not having the perception of time and space ...

- It is this thought that gives me the greatest sufferings as well as the limited field of this prison of the disease that handicaps my daily life in which I must evolve ...

- Everything that takes place outside is blurred, seeming out of reach and to a certain extent, unreal, all this takes on a ghostly aspect.

- My life at least, what I can observe appears as a dead man contemplating life on earth since the other world ...

- I often have the essential need to think about my past in order to better endure the horrible present that is my current life, I do not appreciate it in the least!

- I lose hold on life, absolute nothingness, what good is sometimes to continue like this…. It no longer makes sense ...

- I have so much difficulty reclaiming my previous life!
In the space of so shortly, everything explodes, a lot of breaking inside my being ...

Nevertheless, I converse with my psychologist on it so that we can find a solution and a meaning in my life ...
I consult him every 15 days and each time I cry by telling him that I do not like this I became and he gives me precious advice so that I can find a fullness.
I become aware of the situation and my recovery will be very long.

There I stop my story, I am extremely exhausted to have written this text which was close to my heart.

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