Exchange forum
Le but de l’Amavéa est de permettre aux personnes souffrant de méningiomes de communiquer entre elles.
Et de parler des traitements médicamenteux Androcur, Lutéran, Lutényl et autres
Pour assurer le soutien aux victimes et personnes souffrant de méningiomes, l’association a mis en ligne sur facebook le groupe de discussion privé : Groupe Facebook Amavea. Nous y abordons des sujets tels que :
- What a meningioma is,
- Control MRI for hormonal sub -treatment people who wonder about the link with molecules,
- Links with hormonal treatments and reactions in relation to advances in prevention,
- Procedures and advances to request compensation ...
- For people with meningiomas for whom monitoring by MRI is set up,
- For those who must be operated, feel accompanied,
- For convalescent people, a real mutual aid network because they will be able to communicate with other patients who can help them.
- For those who have been operated on for several years, be able to talk about it and help other patients.
- Support for victims of meningiomas in regions, by putting in contact by region.
This list is not exhaustive because many other subjects interest people affected by this disease.
Relatives of all people suffering from meningiomas will also be able to exchange on all these points.
